A new open-access article was recently published in Deafness & Education International explores how parents of deaf and hard of hearing (DHH) children can play a stronger role in research, policy, and professional practice.
The study, led by the Global Coalition of Parents of Deaf and Hard of Hearing Children, is based on a participatory research process involving parents from across the globe. It focuses on how lived experience can be recognised and used as a form of knowledge in shaping systems that affect DHH children and their families.
The findings highlight the importance of:
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Recognising parents’ lived experience as valuable knowledge
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Moving beyond consultation towards meaningful involvement
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Supporting parent leadership at national and international level
The research also identifies key conditions for effective involvement, including respect, transparency, and genuine collaboration.
This study will inform the development of future guidance and best practices on parental involvement, supporting policymakers, researchers, and practitioners in engaging more effectively with parents of deaf and hard of hearing children.
Read the full article here.
